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Research and Training Center on Community Living
The Research and Training Center on Community Living provides research, evaluation, training, technical assistance and dissemination to support the aspirations of people with developmental disabilities to live full, productive and integrated lives in their communities.
Restraint Policy: Pennsylvania
For helpful information regarding restraints and developing a sensible protocol for their elimination, see the Pennsylvania Mental Retardation Bulletin entitled, Elimination of Restraints Through Positive Practices" developed by the Office of Mental Retardation. When you reach the site, you will be prompted to indicate the Bulletin number. Type: 00-06-09.
Self-Determination -- Health and Human Services Technical Assistance Activities
This site provides one-stop-shopping for information related to the Medicaid program, family caregivers, employment supports for people with disabilities, promoting consumer-driven services and more. The site is updated regularly (Site description provided by Bill Coffelt from the National Coalition on Self-Determination).
State of the States Report
If you want to know what a state believes, don't pay attention to the mission statement or legislative proclamations. Examine the budget. A budget is a statement of beliefs.
David Braddock and other researchers at the University of Colorado have been publishing their State of the States Report for years to help us to understand how each state is doing in its fiscal commitment to community supports. Find out how your state is doing at this great site.
Also: Check out the United Cerebral Palsy Analysis of Medicaid For Americans with Intellectual and Developmental Disabilities for an update on how your state is doing.
Surgeon General's Report -- Closing the Gap
In February 2002, Surgeon General David Satcher wrote a scathing report about the state of health care for people with developmental disabilities in the United States. You can download the report entitled "Closing the Gap" by clicking above and the updated report -- A Call To Action --by by Surgeon General Richard Carmona, MD, by clicking here.
Toolkit for State Medicaid Advocates
Families USA, a national health care consumer advocacy group, has
included on its website an action kit providing arguments that advocates can use when battling Medicaid budget cuts in their states. The kit, "Preserving Medicaid in Tough Times: An Action Kit for State Advocates," contains sections detailing the fiscal condition of the states, discussing strategies for protecting state Medicaid budgets, and highlighting areas of state Medicaid programs most susceptible to cuts. The kit also covers media strategies and provides additional online resources. Click on above, then click on "Advocates' Corner").
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